Below is the latest news from DAFNE Online - including stories related to the website, the DAFNE Course, and Type 1 Diabetes in general. If you feel you have a noteworthy news item, please contact us here.

DVLA change

By marke on April 30, 2013 19:09

Simon Ajina has sent us the following information that we are more than happy to share:

I am not sure if this has filtered down yet but I have managed to get DVLA to change the rules for BG testing before driving to remove the 30 minute bit that came in the new declaration text introduced in I think 2012.
Basically the declaration that insulin-treated Diabetes drivers renewing their license had to sign was that the BG test before I drive should be within 30 minutes of the first drive and then at most 2 hours before every subsequent drive. I had to sign this declaration in March this year when I renewed the license. I found it nonsensical and I tried to find out how to get it changed. My argument was that if you test BG with breakfast say at 08:30am and then drive a short drive at 09:00am and another drive at say 10:30am you are within the law. But if you miss out the first short drive at 09:00am and instead stay at home all relaxed and resting and then take the 2nd drive at 10:30am you would be breaking the law because the BG test was more than 30 minutes before the drive. I also argued that the chances are that your BG would be higher if you rested at home instead of the extra outing at 09:00am and in any case BG probably is peaking at that time after breakfast.

Anyway, I tried to find out how to input this argument into the DVLA discussions and I left a note on a contact us form for the Diabetes UK web site because they publicise the fact that they negotiated the contents of the DIAB1 form with DVLA last year and the year before I think. Anyway I got no response from Diabetes UK, then I did more research and found the minutes of the DVLA Diabetes Panel meeting from last September and that gave me names - so I tracked down the chairperson and managed to contact them and put my arguments across. They promised to raise the matter at the following DVLA Panel meeting scheduled this year.

I was jubilant when I received a letter from DVLA Panel secretary saying they had discussed my points and decided to redefine what appropriate testing meant. I am glad to report that I can now see a new version of the DVLA DIAB1 form online with the new text !!!

The old text was:

I have insulin treated diabetes and I understand the need to test my blood glucose/sugar at times relevant to driving (within 30 minutes before the first journey and every two hours while driving

The new text in DIAB1 April 2013 revised version is:

I have insulin treated diabetes and I understand the need to test my blood glucose/sugar at times relevant to driving (not more than 2 hours before the start of the 1st journey and every 2 hours while driving. The object of this is to ensure the blood glucose is always above 5mmol/l per litre while driving).

Old text in DIAB1 Guidance Notes:
This is a legal requirement and the DVLA medical panel have defined that you need to do this before the first journey and every 2 hours while driving.

New Text in the Guidance Notes:

This is a legal requirement and the DVLA medical panel have defined this as the need to test no more than 2 hours before the start of the 1st journey and every 2 hours while driving. More frequent testing may be required if for any reason there is a greater risk of hypoglycaemia for example after physical activity or altered meal routine.

See new DIAB1
and the updated guidance notes


By marke on December 03, 2012 21:55

The DAFNE User Action Group has raised a petition for central funding of a national structured education programme for diabetics (including DAFNE).
They are publicising this initiative from as many angles as possible, hence this news article. If enough votes are registered then a government debate will be
trigggered which it is hoped will result in some kind of programme to do what is suggested i.e National Structured Education programmes for Diabetes.
This is for ALL Diabetics not just Type 1's.
The link to the e-peittion is:

Type 1 Diabetes – the Lost Tribe campaign

By marke on November 12, 2012 14:51

The Association of British Clinical Diabetologists (ABCD) launched their Lost Tribe campaign on the 8 November. The aim of the campaign is to highlight the differences between the types of diabetes and the fact that patients with type 1 have special needs which are easily overlooked because type 2 diabetes is so much commoner. In particular the campaign will suggest that people with type 1 diabetes deserve unhindered access to specialist care, when they need it, throughout their lives.

Dr Helen Hopkinson, Chair of the DAFNE Executive Board said; "The UK DAFNE Collaborative is pleased to support the ABCD Lost Tribe campaign for people with Type 1 diabetes. We seek a central specialised commissioning process for structured Type 1 diabetes patient education that meets the NICE criteria. We believe this could end the postcode lottery that currently limits access to this vital component of Type 1 diabetes care for up to 50% of the UK."

To find out more about the Lost Tribe campaign visit the ABCD website

DAFNE Collaborative 2012

By marke on July 09, 2012 19:45

You can find a report on the DAFNE Collaborative 2012 here : collab report
Be warned it contains a 'shocking' revelation about night time hypo's

New look DAFNE Online

By marke on June 19, 2012 12:29

In case you hadn't noticed; we've had a facelift! Over the past few weeks we've been working on a new look DAFNE Online, and you can now see it!

As always, if you find any problems then let us know, or if you think we should be doing something different, let us know - we're always open to suggestions. You can get in touch buy clicking the contact link at the bottom of the page or by emailing

DAFNE User Group Newsletter

By marke on February 05, 2012 20:03

The DAFNE User Action Group have just launch a DAFNE User Group newsletter and you can read the first issue here:

Newsletter Post

This will hopefully be a regular newsletter and all copies will be available on DAFNEOnline.

Pump it up

By marke on January 27, 2012 13:04

I'm sure many of you will have missed the pun on the great track by Elvis Costello but cest la vie !
This article is really about the DAFNE Pump study to establish if pumps offer any added benefits over multiple injections with DAFNE training. There is more information on this in the following forum post

Pump Post

So if you haven’t yet done a DAFNE course then follow the link !!

Android App launched

By marke on September 13, 2011 19:49

After many requests and the work of Keith Clarke we are pleased to announce the launch of the DAFNEOnline Android App. You can get it here .
It provides the same functionality as the iPhone app i.e the ability to sync your BG Diary with the site and the means to access the carb counting information.
A big thank you to Keith for taking up the challenge and getting the app developed and released in a short time, after it had sat in development limbo ( mainly due to me, MarkE).

New Handbook Online

By marke on August 25, 2011 18:23

After much blood, sweat and tears we have finally updated the UK handbook on the site to the current version. So all new graduates will recognise the handbook as the one they know, the rest of us can get familiar with the newest version.
The only thing missing is the quiz at the end of the handbook that will be added in the next few weeks. The correction examples in the handbook are now 'interactive' in that the answers can be 'revealed' by clicking on a link.
All our Kiwi Graduates will also be getting their own version of the handbook as soon as we can convert it to a web-format. This will hopefully not be in the too distant future !

UCLH Celebrating over 300 DAFNE Graduates

By Simon on August 06, 2011 11:15

In the spirit of positiveness that DAFNE nurtures UCLH is holding a celebration to mark 300+ graduates from the DAFNE course. We held a similar event last year when we reached 200+ graduates that was well received with good evaluation and a request for a repeat event.

This is primarily a social event to give people the opportunity to catch up with other DAFNE grads and informally swap information. The renewal of contact with the graduates also serves as a reminder that the diabetes team are available as a resource should people wish to make appointments. A 'party bag' is given out which contains various bits and pieces on DAFNE, diabetes and a carbohydrate counting theme.

Here is a picture from last year's event:

The event takes place on Wednesday 14th September and you can get your invitation here