News

Below is the latest news from DAFNE Online - including stories related to the website, the DAFNE Course, and Type 1 Diabetes in general. If you feel you have a noteworthy news item, please contact us here.

DAFNEplus Survey

By marke on September 15, 2017 21:28

As you may or may not know the next version of DAFNE called DAFNEplus is currently in the research stage. This means a new version of the course will be developed and then 'tested' to see if it gives better results than the current version. Part of this 'research' is a survey that we have been asked to promote on DAFNEOnline. To quote them

The survey opened last week and will close at the end of October 2017. It's open to 18-75 year olds with type 1 and type 2 diabetes. Our aim is to assess various diabetes specific quality of life measures. There are more details here on the webpage ( http://www.yoursay.org.au/ ) and also in our blog post - https://dafneplusresearch.wordpress.com/2017/09/05/dafneplus-have-your-say-on-quality-of-life/

So please do go and fill it in and it may influence DAFNE Courses in the future........

Kings Open Days

By marke on July 19, 2017 16:32

If you are a King's DAFNE Graduate then we'd like to invite you to one of our DAFNE Refresher Days, which we run throughout the year. See here . for poster and dates.
They are for any King's College Hospital patients who have attended a DAFNE course in the past. The days are an ideal way to refresh carbohydrate counting and insulin dose adjustment skills, with morning workshops focusing on these areas for everyone and the afternoon sessions being a choice of two workshops including exercise, eating out and alcohol, pump management and emotional well-being.
The days are always well evaluated, with people enjoying being able to meet and chat to other people with type 1 diabetes as well as the pharmaceutical reps and charities we have supporting the event.
The day also has exciting talks by members of the team on new diabetes research developments, a focus on behaviour and beliefs and an "On The Sofa" session where you get to pose your questions to the team.
For further information, or to book your spot please contact us on kch-tr.dafnekings@nhs.net or ring 0203 299 1812 with your information.

secure logins now supported

By marke on March 28, 2017 19:44

We have just updated the site to allow you to access it via https. I know that won't mean much to a lot of people, however to ensure your password is secure when you enter it on the site you need to use the address https://www.dafneonline.co.uk to access the site. Your browser will most likely warn you if you access it as http://www.dafneonline.co.uk and click in the password field. Its warning you that its not secure which is why you need to use the https prefix which protects all messages between your device and the site.

Forums Fixed

By marke on February 16, 2017 20:40

All,
The forums are all fixed and working again now, apologies for the downtime we had no idea there was an issue until someone emailed us. We will try to ensure it doesn't happen again but it seems we are human after all ;-)

Forums Issue

By marke on February 16, 2017 17:15

All,
It seems a recent update to the site has broken the forums. We have only just realised today ( 16/02/17 ) and a working to fix it as soon as we can. Apologies for the inconvenience !

Would you like to be involved in research?

By marke on November 21, 2016 19:32

Researchers at the University of Sheffield have designed a questionnaire to find out how much self-management impacts on people living with diabetes. They are testing their questionnaire at the moment, and are looking for volunteers to complete their online survey. Anyone can complete the survey, as long as you live in the UK and are over 18 years old. Click here to access the survey. https://healthsurvey.shef.ac.uk/hasmid

The project is funded by The Health Foundation, and has full ethics approval. Participants who complete the online questionnaire can choose to enter a prize draw to win a £50 shopping voucher. They have prizes for every 50 completed questionnaires.

NICE Guidance on Diabetes

By marke on August 19, 2016 20:39

We have been asked to publish the following:
The updated NICE quality standard for adults with diabetes was published on 18 August 2016. The standard is aimed at commissioners and sets out a concise set of prioritised statements designed to drive measurable improvements in the quality of diabetes care. The DAFNE programme has officially supported the new standard.

So what does that mean if you don't live in NHS Land ? Well you can read the document here and what it contains is a load of stuff that would be a good idea if the NHS actually did it i.e letting us manage ourselves in Hospital and being given structured education within 12 months of diagnosis. However its just ideas and is not mandatory so all we can do it hope.....

Carb counting response

By Simon on February 01, 2016 09:47

In December the DAFNE Educator network asked for feedback on the following question: "Can DAFNE consider changing from the use of CP’s to g of carbohydrate?" Input was collected on dafneonline during December and January and the feedback was taken to the DAFNE Executive board meeting on 25th January. As a result of the graduate feedback it has been decided that no change should be made to the use of CPs. Many thanks to everyone who contributed.

JDRF Fund Raisers

By marke on July 27, 2015 18:44

All we have been requested to promote a couple of upcoming Juvenile Diabetes Research Foundation (JDRF) events on the site, so here they are. Please click on the links for more information

Ain't No Mountain High Enough Challenge - The link for the event is here - https://www.jdrf.org.uk/get-involved/join-in-an-event/treks/aint-no-mountain-high-enough and the deadline for people to sign up is the end of this week.

One Walk - The link for the event is here - https://www.jdrf.org.uk/get-involved/join-in-an-event/walks/one-walk-london-bridges and the deadline for people to sign up is the end of September.

DAFNE Online Roadshow

By marke on April 27, 2015 18:12

On Saturday we took our fantastic DAFNE Online presentation to Addenbrooke's Hospital Cambridge for their patient day. It was a very well run day and a good example to other centres. We presented our usual highly polished, professional presentation :-) that explains how to use the app and site. We also added a few members by signing up people on the day. In reality, good though we were, we were just the warm up act for the next speaker who was billed as the 'inspirational speaker'. I must admit to being a bit dubious when I saw this on the agenda, but no they were right. The speaker was Gavin Griffiths who is also known as diAthlete and his story should be an inspiration to us all. He was diagnosed as Type 1 at 8 years old and like most of us spent the next 8-9 years being told what he could not do and got increasingly frustrated by this. Unlike most of us, he decided he was going to prove all these people wrong. His first way of doing this was to run 29 miles in 3 hours for charity. He then just took on more and more challenging tasks. Probably the biggest of which was to run from John O'Groats to Lands End, 30 miles for 30 days. As he said to us, Eddie Izzard does it and the whole of the UK media are there, a Type 1 diabetic does it and hardly anyone cares ( not even the national Diabetes Charity, but lest not go there). He has plans for bigger challenges yet and listening and chatting to him just shows you what you can achieve if you DON'T let all those people who tell you Type 1 limits you !! Respect !