What am I?

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Daveyg 1 post

I was diagnosed with Type 2 Diabetes back in May this year. As time went by and numerous visits to Diabetic clinics. I was told I was no longer a Type 2 but a Type 1 Diabetic. I was originally booked on a DESMOND course, but that has now been cancelled and they have told me about DAFNE. So far I have had no information, regarding carbs or diet. I am still taking tablets for my diabetes, but the specialist says I will soon be taking insulin. I have noticed that DAFNE only speaks about insulin doses. I am very confused at the moment. Especially when one specialist says that I have LADA, not a Type 1 or 2 but type 1.5 which I have never heard of.
Can anyone help/advise
Thank you

Davey

HelenP DAFNE Graduate
Queensland Diabetes Centre, Brisbane, QLD
209 posts

Hi Davey,

I am not an HCP but I have had all the diagnoses you have...and gestational diabetes! I was initially diagnosed "gestational" in 1974, very quickly (6 months after baby delivered) went to Type 2, then shortly after a coma and Type 1 and then back to Type 1.5, LADA!

Basically I do not care what they call it as long as the treatment deals with the blood sugar levels. We have settled on Type 1 because the only medication I take is insulin but in relatively high doses so insulin sensitivity is also an issue.

DAFNE will answer a lot of questions but basically it is a very individual condition and thus in some part, the issue over terminology. Trust it all gets sorted but you will come to realise there are no absolute answers...they vary. Helen

novorapidboi26 DAFNE Graduate
NHS Lanarkshire
1,784 posts

It makes me sad to hear of people being messed about like this.......

if your blood sugar levels indicate you need the help of insulin then DAFNE will be very helpful.....it will set in the basics that will allow you to make dose adjustments from the patterns you see.....makes you self sufficient, which is very important for a diabetic....

if you are type 1.5 then you are essentially a type 1, but its just coming on very slowly.......so you could have decent insulin production for a good while yet.....which unfortunately makes it a tad difficult to get the doses all set up, but its manageable.....

if you can get a blood glucose meter and get testing and record your results, as well as the carbs you eat, that will be a very good start...

RJIH DAFNE Graduate
Oxford - OCDEM
3 posts

Daveyg said:
I was diagnosed with Type 2 Diabetes back in May this year. As time went by and numerous visits to Diabetic clinics. I was told I was no longer a Type 2 but a Type 1 Diabetic. I was originally booked on a DESMOND course, but that has now been cancelled and they have told me about DAFNE. So far I have had no information, regarding carbs or diet. I am still taking tablets for my diabetes, but the specialist says I will soon be taking insulin. I have noticed that DAFNE only speaks about insulin doses. I am very confused at the moment. Especially when one specialist says that I have LADA, not a Type 1 or 2 but type 1.5 which I have never heard of.
Can anyone help/advise
Thank you

Davey

Rolling Eyes
I think this is not uncommon as they get to understand dm better. On my dafne course ( absolutely brilliant) there were 3 of 10 of us with late onset type one or type 2 converts. So don't worry. You should get some basic carb info meanwhile diabetes.uk is good source of info. There's a lot of us who don't fit the box with reduced insulin rather than none. It does not seem to matter what you are called as long as you get a management plan . Dafne lets YOU take control.