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wendyx1961 DAFNE Graduate
James Paget University Hospitals NHS Foundation Trust
2 posts

Was told at diabetic clinic I’m to precise he said with my readings you wouldn’t know I’ve been type 1 for 36 years !!!! I thought the object was to control your diabetes !!! Now their telling me to ease off which I have and my reading are in double figures,so again I’m trying to get them between 6 and 10 which is what they want,I’m so fed up with it now,is their a dafne trained nurse or doctor at James Padgett ??? Cos I really need one right now !!!!

novorapidboi26 DAFNE Graduate
NHS Lanarkshire
1,789 posts

Non-HCP here....

What does too precise actually mean.....?

What are your BG levels at.....?

You wouldn't need to ease off in my opinion and certainly after 36 years you shouldn't feel compelled to do anything you don't want to....if its working already....

Was the DAFNE approach much different to what you had been doing before....?

Are you comfortable with dose adjustment....?

wendyx1961 DAFNE Graduate
James Paget University Hospitals NHS Foundation Trust
2 posts

I have been doing it the dafne way for years !!! And yes the dafne way is so different to the way I used to do it,before dafne my reading were off the scale so high my monitor couldn’t read them which is why I was put on the dafne course in the first place !!!

My blood sugars are as they put it “Normal” !!!! Just like a person without diabetes.
But that’s the dafne aim !!!

Since they scraped the dafne course through funding their is no one to talk too,if you do have a problem as a lot of nurses and doctors are not trained in dafne,you cannot even get monitoring diaries anymore which is why I’ve had to go online god knows what would happen if I couldn’t !!! As your blood results are key to dafne !!!!

Think I’m just going to have to stick to what I know !!!!

The dafne course and way is the only thing that got my diabetes under control pitty more doctors and nurses weren’t trained so at least you’d have someone to talk to !!!!

Muncle DAFNE Graduate
University Hospitals, Leicester
8 posts

Hi Weendyx1961, I read a book recently by Dr Emma Mardlin who has had Type 1 Diabetes since a child. one thing she says in the book which I found to be very profound and true is "You know your body & your diabetes better than anyone" which includes doctors, nurses and specialists.

I understand why Health Care Professionals recommend you keep your BG around 6 - 10 as they are trying a one size fits all but if you are maintaining BG's of say 4 - 7 and it is working for you without going into Hypo too regular, then if it was me I would go for what I think works best for me.

If you get chance to Read Emma's book then I can recommend it, it's called "Mind Body Diabetes Type 1 And Type 2: " Wink

novorapidboi26 DAFNE Graduate
NHS Lanarkshire
1,789 posts

So are you saying that the nurses on your team are not DAFNE trained.....?

Stick to the DAFNE principles for sure......no doctors or nurses should be telling you to do it differently.....

You can always ask in here or one of the other UK forums for help on any thing you need...

As far as monitoring diaries are concerned I actually made my own up with a spreadsheet.....this was before the pump came along and now I only write it down when I need to assess a dose change....